Schedule & Agenda
Tuesday, June 6
1:45 PM - 2:45 PM
2023 marks the 40th anniversary of the Orphan Drug Act (ODA). Many advances have been made in the…
3:00 PM - 4:00 PM
The NIH estimates indicate that about 1 in 10 people in the United States have a rare disease, and…
4:15 PM - 5:15 PM
Data only has value when it is discoverable, shareable, and usable, but most rare disease data…